ABOUT US
Our History
Founded in 2013 as Muscular Dystrophy Society Kenya. Formally registered in 2025.
Grounded in Disability Justice Principles: Interdependence, Collective Liberation, and Wholeness.
Co-convener of Rare Disease Day celebrations in Kenya from 2014 to 2017 alongside Stepping Stones Kenya and Gertrude’s Children’s Hospital Foundation.
The Team
Co-Founder & Co-Executive Director
Feminist scholar, author, researcher and disability inclusion expert with muscular dystrophy. Member of the Global Limb Girdle Muscular Dystrophy Community Advisory Board. Global consultant on disability, gender and organising working with community based, national, international and UN bodies. Masters in Disability Studies and Inclusive Education from Syracuse University-USA.
Co-Founder & Co-Executive Director
Educator & Administrator. 36 years of public service, including 27 years as secondary school Principal. Court Accredited Mediator (2023) and certified by CREA Disability, Sexuality and Rights Online Institute-East Africa (2025). Bachelor’s degree in Education from Kenyatta University.